Patient Experience, Expectations and Knowledge (PEEK) is a research program developed by the Centre for Community-Driven Research. The first tranche commenced in June 2017 and over the next five years we will conduct studies in 50 disease areas. After that, we will repeat them so that we can evaluate the progress that we as a health sector have made in supporting patients and their families.
In PEEK studies, we give patients the chance to talk about their experience in the health system – what has been helpful and what could have been better – and then ask them what they think should happen in the future to better support patients and their families. So often, there is a limited window of opportunity for patients to provide feedback, so we need to be proactive. One of the benefits of collecting this data proactively is that it means we always have access to the patient voice when we need to make decisions about our health system.
We have done a number of similar studies and also find that the process of reflecting and talking about their experience is therapeutic for patients in itself, and provides them with an important opportunity to have their voice heard. This is how we do it:
- We work with partners to identify disease/condition areas to conduct studies in
- The studies include a qualitative and quantitative component
- This results in a report that details the experience and expectations of patients
- De-itentified data is then stored in a repository. This will be made available for research and advocacy purposes through a governed, application process
- We aim to repeat studies every 3 to 5 years to see where there have been changes in patient experience and evaluate the impact of new treatments, interventions and clinical protocols
To the right, you can access a sample report structure. If you would like to talk about conducting a PEEK study, contact us at firstname.lastname@example.org
The aim of PEEK is to provide stakeholders with access to a repository of research reports detailing the experience and expectations of patients, as well as access to the underlying raw qualitative and quantitative data. Just as there are biobanks that hold information about individual patient biology, PEEK will provide a ‘bank’ of data about patient experience, expectations and knowledge, a historical record of how patients experience health systems across the years and the ability to evaluate the impact of new treatments, interventions and clinical protocols.